DNA “Services” sell your genetic info to Big Pharma

From blog: The Legal Genealogist (link at bottom)

If you don’t want your data sold to Big Pharma (new for 2015): Many genealogists — because of our general interest in research — are perfectly happy to have their DNA data used for health- and medical-related research. But it’s important to know just who might be getting the data in order to do the research. It isn’t, say, the National Institutes of Health, with the benefits and findings from the research universally shared with all Americans. It’s the pharmaceutical industry, which will patent its findings and charge what the market will bear for any treatments or drugs that result. There’s nothing legally wrong with this — but it makes some of us uncomfortable. So understand what you’re agreeing to if you test. The terms of use at 23andMe allow it to sell the data of anyone who has consented to participate in research15 and, in fact, it has just entered into two agreements with major pharmaceutical companies to do just that.16 And it can share your data combined with that of all other 23andMe users even if you didn’t consent to research. Those who agree to participate in AncestryDNA’s research project agree to allow their genealogical, genetic, and health information to be used and shared with third-party researchers17 — which can include private companies like the pharmaceutical industry. Both companies will require additional specific consent to share your personal identifying information (name, address and the like). If you don’t want your data used this way, you should only test with Family Tree DNA. Its terms of use (from parent company Gene by Gene) provide that you will be individually asked for consent if it ever wants to share your genetic data with anyone.18

http://www.legalgenealogist.com/blog/2015/02/02/2015-most-bang-for-the-dna-buck/

THE PREDATORY BS NEVER ENDS!