Parents / What are they thinking? Re-Post

What we need is a diagnosis for Poor Parenting Spectrum Disorder. (PPSD)

Comments from a parent-oriented site dealing with Sensory Processing Disorder.

Note how many times the goal of having their children diagnosed Autistic or Asperger comes up. Names removed for privacy.

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Sensory Processing Disorder (SPD) comments by parents.

OT Occupational Therapy; AS Asperger’s Disorder, ASD Autism Spectrum Disorder; DX diagnosed

1. We went to a neurologist first who was a waste of time.  We then went to an OT (occupational therapist) who diagnosed SPD, low muscle tone, and agreed w/ possible AS characteristics.  I then contacted his ped(iatrician) to find out who could do an AS eval(uation) and he said he could do the initial eval. himself.  So we did the AS/ASD eval. Today. We also have an eval. w/ the school system scheduled to determine if he qualifies for school services which he should w/ the spd/asperger diagnosis. I’d recommend calling your ped. and asking for an OT referral and then the OT can direct you elsewhere if you need it.” (Are occupational therapists qualified to diagnose SPD / ASD?)

2. I have a son with both SPD and AS and I agree with your OT based on the things you mentioned in your post. I also have to say that my son with AS does all of the three things mentioned in the above post.

3. My son is 4.5yr. and recently diagnosed with SPD although we’ve known since a few mo. old that something was going on. He is a sensory seeker w/ poor coordination, fine motor skills, low muscle done, and regulation issues. But he also has some extreme interests like math (since when is math an extreme interest??) and then other interests come and go but usually there is something he is focused on and he could talk nonstop about that one topic.  He’ll keep talking about the topic regardless of whether the person is actually listening or not and doesn’t realize when we are trying to change the subject or end the conversation. (Wow! Shut up, kid. You bore me. So much for parents being interested in their child’s intellectual development!) He is very literal, he doesn’t understand sarcasm, jokes, teasing, figures of speech. Changes in routine almost always cause a meltdown. (And I bet he’s often on the receiving end of sarcasm and teasing in this family.)

I had just been thinking that these quirky characteristics may not be explained by the SPD and might point toward Aspergers. He does however have a very advanced vocabulary and makes eye contact great with us at least, haven’t really paid attention to his eye contact with others.

4. I think mine (child) has some form of high functioning autism/aspergers too-psychiatrist doesnt see it, but she also had to be convinced via paperwork that he had sensory integration problems too- his focus is trains & he doesnt play the right way (just what is the ‘right way’ to play with trains?) he knows how to “hide” or “mask” some of the symptoms-(OMG! It’s the bizarre belief that Asperger children are deviant masters of deception, which is a paranoid projection spread by psychologists.) he can pretend play if you dont already know what it is he is mimicking- he has his sibs play/act out whatever they are watching or just watched on tv. My sensory kiddo also repeats things he has heard or is hearing-drives his teacher nuts with it-but she is trying…he didnt speak until this past late june/early july-& it was sensory stimulated from riding tower of terror @ disney world-he literally stopped us in the lane & monologued about the ride for about 45 minutes-we were all too shocked to move him for fear of him stopping talking-til then he only used one or 2 words to convey messages & he still cant actually hold a conversation unless he wants to or has planned it all out.

it will be interesting to see how our evals all go- we are on (brand of medication) because its generic & we arent quite 6 yet (insurance wont cover it til then)…it slows him down enough to make some choices/not do dangerous things as often, but he still has moments (When did the belief originate that young children wanting to run around outdoors, jump in puddles, climb trees, ride bicycles, throw snow balls and play tug-of-war and behave like healthy children is “dangerous?” Or are parents too lazy to supervise outdoor play?)

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5. Well, I am fairly certain my daughter is gonna be dx as being somewhere on the autism spectrum. This will be my THIRD child w an ASD dx. I was hoping it was “just” sensory, but I don’t think so anymore. She stim ALOT. When she first started, it wasn’t that much. It is more now. She has been home from school due to Xmas break plus she’s been homes 2 extra days now bc of a fractured collar bone. She mostly just stims…she looks at books and stims, stims with toys, etc. She doesn’t really play w toys, she stims with them. To watch her, it’s really weird looking. Her play is odd for sure. Social skills w peers isn’t great. Her only interaction w peers is at school. She doesn’t have any “real” friends…she will run around w some kids on the playground and has supposedly played w some kids, but it’s inconsistent. SHE is inconsistent. She will have a good day w minimal stimming and then the next day will not be good.

What’s hard is I had really no concerns about her til sometime after she turned 3 and started school. School doesn’t seem to have many concerns about her at all and just chalk it up to being shy. I think there is some truth to her being shy, but I don’t think that’s all it is. She is fine academically and talks fine, can have a conversation, etc. She has a 3 yr old sister that she sometimes plays appropriately with, but usually not. She is getting evaluated i cannot wait.

Specific children may be neurodiverse, but sometimes it’s “wacky” parents who make them ill.

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